My family has a vacation planned! The first one in over 8 years - exciting - yes; worrisome - yes that too! Why, you say?? Vacations have not notoriously been a good thing for me and I don't want to ruin my family's good time. I hate being the downer in the room --- no fun at all.
Believe it or not, even a vacation can be a stressful illness causing event for people with CFS/ME/Fibro and more. The heat, sun, travel, having too much fun, can all cause exacerbation of symptoms and land you in bed for an extended stay. I so remember years ago, going camping with my family (which I loved) and getting to much sun and then having a huge outbreak of fever blisters all over my mouth and nose - so sick and we had to pack up and leave early. It took so long to get over that trip and I was still working full time at that time and no one could understand how I could go back to work and be worse off than BEFORE vacation. Such is the life with these illnesses.
So here we are trying to give it another try and I am trying to be optimistic and get excited.....cautiously but excited. Things to remember - lots of sun block (have to find one that does not cause breakouts), drink, drink, and drink water -- can't tell you how many times my hubby has had to go out in the middle of the night for meds for bladder infection while on vacation or at a conference (caused by the Interstitial Cystitis) and that is no fun - seems to always happen when all stores are closed. Be careful what I eat and don't over do or over eat.....or over anything. Easy right? Takes practice but it is doable. Then there is the drive to get there - don't get car sick - sit in the right place in the car; take meds before the headache comes and do all that you can to avoid any infections - sinus, bladder, ear, etc.
I am surely not complaining --- just trying to make this an enjoyable time for my family and hopefully I will have some fun too. ;o) Just being with them is fun enough for me. Many times I stay behind because it is just easier for them and for me and I do it knowing that they will enjoy the freedom; freedom from the worry and aggravation of having to deal with a chronic illness. It wears you down and no one can understand unless they have lived with it. Those of you who know - understand and relate. We do what we have to and are happy to do it. Sooooo here's to vacation!! Enjoy ---- but not too much. ;o)
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