WAFM to DAHM

First I was a work away from home Mom and it was very hard....then I was a SAHM - stay at home mom and mother of 4- then I tried being a WAHM - work at home mom and that was awesome......But now I am a DAHM - Disabled at home Mom and I am doing the best that I can to make that Okay! Recently I have added caregiver and advocate to my 84 year old mother who suffers from Dementia and mental illness. Such is life... I hope you visit here and find a reason to smile and a little Joy!
Showing posts with label ME/CFS. Show all posts
Showing posts with label ME/CFS. Show all posts

Tuesday, March 24, 2009

Being Disabled Can Be a Blessing!!

Believe it or not, you can turn your disability into a positive thing. It just takes a little time - after you morn the life you won't be having and get over the anger, move on to embrace what you love about your new life. It's not always easy but you can do it!

I was thinking about this earlier today and it brought me back to a time years ago when I was 25, the mother of two little boys, 9 months and 3 and they were the center of my existence!! I had a mole on the right side of my chest that had been getting larger and larger for a few years and I kept putting off checking into it - sort of a bury your head in the sand and it will go away kind of thinking. Then in an instant it became an emergency - I was innocently reading a "Good Housekeeping" magazine and in it there was an article about Melanoma - Uh Oh - there were pictures and alarm bells went off and I was in a state of panic. My Dad had died of lung cancer when I was only 17 and since that time I was always on alert for the allusive symptom that would strike me with a similar diagnosis.

Long story short, a friend of mine convinced me to go to the doctor the very next day and my kind old physician told me he feared it was a malignant melanoma and should remove it right away. So, I let him make a deep wide angled cut into my chest that very day and send it off for diagnosis just knowing that I was going to die. All that I could think of was my sweet little boys and what would happen to them - I was obsessed and unfortunately it would take at least a week to get the results back. That was a week of suffering for me and my family - I drove them nuts to say the least - it wasn't about me but about my babies - they needed me. I called my beloved OB/GYN - he had been my doctor since the age of 16 and I talked to him about what this diagnosis could mean - bad idea for someone like me. He told me about these types of cancer metastasizing, commonly going to the brain - Oh my GOD - my boys just did not deserve this.

Well, after a little over a week of non-stop drama, I found out that the mole was benign! I still remember the tremendous sense of relief and I can honestly say that this event changed my life. Some good ways and some bad but changed it all the same! I was so thankful just to do ordnary things and spend time with my babies!! Each day was a gift.... Now I see my disability the same way - not nearly as traumatic but I look at everything differently now and you can too!

I am thankful for the dirty dishes in my sink because that is something that I can still do for my family. I make my 13 year old's bed for him most days because that is a small thing that I can do for him when there are so many things that I can't do. I LOVE doing laundry even though I mess it up sometimes, it makes my guys happy and they appreciate it. The highlight of my day is fetching the mail - because most days I can!! Making a meal, baking cookies, paying a bill - all things that I can do sometimes are all tremendous triumphs and so greatly appreciated by me.

Each day after my son and husband have fallen asleep, and the house is quiet (I am normally still awake because I don't sleep well and dread going to bed) I think back over the day and if I have been able to do at least a couple of things for them, I am so very thankful and I feel my day was a success. Rather than dwell on the many things I can no longer do, I chose to be thankful for what I have learned to appreciate.

Sunday, March 22, 2009

Moving Onward.......

Last week I found out that my appeal with the Social Security Disability filing had been denied. This means that I will have to go to court and appear before a judge. I don't really mind doing that - it does make me nervous, but I welcome the opportunity for them to see me and let me answer their questions. ONLY problem is.......the wait to get a hearing is 8-36 months with a national average of 19 months! That is just unbelievable and I am sure it is worse right now due to all of the money problems we are all having. If I didn't have to, I sure would not be filing.

Having said all that, I do feel that I worked hard for over 32 years and kept working long after I was first diagnosed and should have quit years ago. Now that seems to be causing me a problem - both statements that I received from the SS states that I should go back to what I was doing. Believe me if I could - I would.

The little car above is so dear to me because it reminds me of what I used to love doing - going for a drive - run to the store on a whim, take my son here and there. Now I can't drive unless it is absolutely necessary and very rarely do and only close to my home. It is just not safe and I realize that but it is so hard.

Sometimes I even get an idea in my head that I will just run to the fabric store and browse - something I just love to do. Then when the reality sets in that I will have to dress, do something with my hair, put on make-up and then still have the energy to drive out and back, I just give up and don't go. On rare days when I am able to get out, the freedom is so wonderful and I think I can just do anything. Unfortunately within about a half an hour, I know that I have to return home or I won't be able to get myself there.

I would suggest to anyone in the same situation, to try to do all that you can to provide information to your disability advocate to get your case before a judge quickly. Also - find something that you can do and enjoy each and every day. Above all, I have learned that if I concentrate on others - even just doing small things for someone else, then I don't have time to feel sorry for myself. Each and every day I am thankful for my many blessing as we all should be. There is always something to be thankful for and show gratitude for! At least for today, I will count my blessings and think about what I can do rather than what I can't!