I am one of those people, as I have said many times, who is glass half full....more than likely because I am just so very relieved not to be where I was just a few short years ago. I was trying to continue to work and be miserable and there seemed no end in sight - except maybe death. That sounds extreme but it is true. When I finally gave up on that illusion and admitted I could no longer pretend, then my world got a little brighter and has been since.
I try to reach out to those that are suffering the same, and stay positive and offer a little insight into what I have learned the hard way. Never, never do I intend to imply that I know it all - no one does in this case - the all is unknown and the future is unknown for these types of illnesses. We walk the path of uncertainty and if anyone who walks ahead of me passes back a few good tips, I am happy to receive them. I, in turn, wish to keep an eye on those following my path - it is not one I would choose and not always very pleasant ---- but - if we hold hands and share our experiences we can make the best of this journey and realize that it may not be what we saw for ourselves, but it can still be an enjoyable life, just different.
Having said all of this - I can only say - be open to those who reach out for your hand, try to trust and listen for they may be carrying just the nugget in their backpack that can be useful to you ---- for many times those we entertain are angels unaware. Don't always assume that concern and care are intrusive and annoying - many times they are just truly care and concern and a true desire to reach out. How will you ever know if you keep those hands shoved in your pockets tightly clasped until you are bare knuckled? The answer is - you won't! Take a chance - live this life the best it can be lived.
Okay - I warned this was a rant but I get so frustrated by the stigma of this mysterious invisible illness - it causes us to doubt each other even when we are the same. Until we decide to work together and learn from each other, no one else with take us and the ugly "F" illness seriously!
